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   Web Issue 3191 July 4 2008   
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Hospice care provision is now under threat

April 1 was an appropriate date for publication of Andrew O Robertson's letter as it fails to allay fears about the future of St Margaret's Hospice in Clydebank. I recently met Mr Robertson, chairman of NHS Greater Glasgow and Clyde. I asked that the health board reinstate the five-year contract to provide care to the frail elderly which had been agreed between the hospice and the board and which was, without explanation, removed by the board. The hospice has never had a contract and this leaves us vulnerable to changing board policies, in particular the private funding of the replacement hospital at Blawarthill where our beds are to go.

Mr Robertson's response to my request to give the hospice security of provision was to write to me a "personal" letter copied to various parties. This was addressed not to the hospice but to a place of business I have not occupied for nearly two years. It was transmitted by fax at 5.05pm on a Friday. Instead of offering reassurance to allay my or anyone else's fears, he advised that referrals to the hospice for care of the frail elderly would cease from April 1, 2009. The only options open to the hospice were to provide Social Work Department-funded care home beds or health board-funded beds for the care of people with mental illness. Neither provision is consistent with the work Scotland's oldest and largest hospice has provided for some 58 years. There has been no attempt by the health board to provide a solution maintaining the hospice care we provide, as it has been requested to do by the Petitions Committee of the Scottish Parliament, members of all political parties and the 90,000 people who have signed a petition of support.

The hospice needs to raise £30,000 a week. A formula providing half of the approved funding for care of patients in the palliative care ward falls well short of requirements. The patients we look after in the frail elderly ward deserve hospice care. There should be full cost recovery from the health board for these patients. To withdraw that funding removes two-thirds of the monies we receive from the health board. Hospice care at St Margaret's would cease if we could not raise an additional £40,000 per week. More importantly, our patients would lose the care we provide when they most need it.

The health board must recognise it needs to change policy or risk losing a beacon of excellent care. The people who attended last Thursday's meeting and all our supporters are in no doubt what the effect of misguided action by the health board will be.

Professor Leo Martin, Chairman, St Margaret of Scotland Hospice, East Barns Street, Clydebank.

Scrutiny of the NHS
Douglas Sinclair of the Scottish Consumer Council makes an interesting contribution to the debate on scrutiny of NHS services (The Herald, March 26). It is, however, important to recognise NHS Scotland is subject to independent scrutiny by Audit Scotland, which scrutinises regularly NHS finances and reviews the performance of services. Moreover, although NHS Quality Improvement Scotland is a special health board, it is independent in its assessments of the quality of clinical services and of the care and treatment provided to patients, and in the recommendations it makes to the government and the NHS. This is reinforced by the inclusion of patients and members of the public (alongside clinical experts) as full members of its review teams.

NHS QIS does not hesitate to highlight where NHS services fall short, and it publishes all its findings. This was exemplified by our report on chronic pain covered in The Herald last week. Independence depends upon more than formal structures and procedures. The track record of scrutiny in the NHS stands comparison with the rest of the public sector.

Sir Graham Teasdale, Chairman, NHS Quality Improvement Scotland, 50 West Nile Street, Glasgow.


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Posted by: sid the sceptic, renfrewshire on 9:20am Wed 2 Apr 08
nhs greater glasgow and clyde should hang there heads in shame. the hospice movement provide a much needed service to all in our comunities. for an unelected quango to treat these people in such a way is a disgrace. they choose how they use the very large budget they recieve. as more and more stories like this one come to our attention we must begin to question wether they are actually capable of doing the job there pals have given them! ditch some of the crap they waste our money on and use it properly
Posted by: susanm, Clydebank on 12:17pm Wed 2 Apr 08
Having followed the appalling treatment of the Hospice over the last few months, I read Andrew O Robertson’s letter with interest and hope.

I then read Professor Leo Martin’s fantastic response to Mr Robertson’s somewhat lame – and misleading – letter.

Firstly, isn’t it disgraceful that a professional, well respected man such as Professor Martin is forced to take part in the playground activities of a Health Board who seem adamant to direct their correspondence with the hospice through the local media? Is it acceptable to allow a highly paid civil servant to exploit his position in this way?

What I found most interesting however, and I have to quote from Douglas Sinclair’s article of 26 March, is that once again Greater Glasgow and Clyde Health Board "didn't consult properly, don't listen and have already made up their mind". Is this the way we are going to allow our Health Board to conduct themselves??

The Queen Mother, Vale of Leven, Homeopathic Hospital to name a few – they’ve tried to close them all and failed. Welcome to your next failure Mr Divers.
Posted by: gailr, Glasgow on 6:57pm Wed 2 Apr 08
I fully support the tremendous work undertaken through St Margaret’s Hospice and others like it, and believe that the NHS should continue to, if not increase, its support to this vital work. But I am concerned that the continuation of palliative care services at St Margaret’s seems so financially reliant on continuing care bed funding. If, as it seems from press coverage that the two services are financed separately, how can the loss of continuing care means that hospice care could only be maintained if the hospice raises an additional £40,000 per week? I don’t think that other hospices provide continuing care, so why is St Margaret’s in such a vulnerable position?

Posted by: doctorguy, torrance on 9:06pm Wed 2 Apr 08
The health board have offered alternative uses of the beds but these are not appropriate to the environment or the high level of expertise that has been acquired over many years in caring for the elderly with complex nursing and medical needs. Could the health board be trying to save money by "constructive dismissal". I think the board should come clean and realise that ultimately public opinion will overcome their ill thought out strategy that will adversely affect the most vulnerable in society and their families .
Posted by: Wilks, Glasgow on 10:08pm Wed 2 Apr 08
I have to wonder why this is happening, these decision makers in the health board are paid handsomely by all of us. What makes them think they are then in a position to ignore the needs of so many people, (many of whom will have spent their lives paying into the health service) and to deny them hospice care. It should not matter what age someone is, (and the health board have to recognise this) if they need the care provided at St Margarets, they should receive it there.Who do these people think they are to try and deny frail older people excellent end of life care when they obviously need it. One never knows what is ahead in life, any one of us may become older and develop a life limiting illness, and I personally would want to know that those professionals specially trained in end of life care are given the opportunity to provide that service in a Hospice with such an outstanding reputation and not denied using their skills by those in a health board office who by their actions appear to know nothing about such needs.This letter refers to a petition from so many, waken up those sitting in their health board offices and listen to the contributors to the NHS, the people who own it, paying your wages and the people who provide such specialised care and stop hiding behind paper. I would be delighted if you were to prove me wrong by reversing this decision and show everyone you know what you are talking about and actually care. In this day and age, situations like this should not be allowed to develop, peoples voices should be listened to.
Posted by: Hugh, Clydebank on 11:24pm Wed 2 Apr 08
I find it odd the Health Board Chairman chooses to write to the letters page rather than a Health Board representative show up at the Public Meeting held in Clydebank Town Hall last week. I attended the meeting at which Professor Leo Martin described the Hospice's treatment by the Health Board. I find it shocking that the Health Board - which has received the services of St Margaret of Scotland Hospice for 58 years - is choosing to offer alternatives such as these. Having visited the Hospice it is clear, patients such as those being offered, would not be appropriate for the Hospice environment. Have the Health Board decision-makers visited the Hospice to witness for themselves the care provided?! Maybe, instead of writing letters to the Herald, they should take the time out to visit. It's time for them to turn this decision around and listen to the public voice who do not want it to happen. The Hospice provides wonderful care to the sick, the dying and support their families. This should not be removed.
Posted by: Julie, Old Kilpatrick on 12:43am Thu 3 Apr 08
Having attended the very well supported Public Meeting held in Clydebank Town Hall last week I continue to be at a loss in understanding the motives of the Health Board in this sorry affair.

There does not seem to be any evidence to support their claims that the needs of the ageing population are changing and why disrupt a service that has worked so well for so long? The palliative beds and continuing care beds are complementary to each other and result in an excellent level of patient care. If the beds are not needed why are they needed at Blawarthill? Why not put the patients intended for the Hospice to Blawarthill?

The Health Board would do well to remember that the patients who will be affected by these ill thought out plans are amongst the most vulnerable in society. We have an obligation to do what we can to ensure that they receive the very best of care - they type of care we would all want for ourselves and our families - and we should be grateful to the Hospice for this.

This campaign has received excellent cross-party support and we can only hope that the Health Board will recognise that this is for a very good reason - the Hospice is a shining example of how to care for those who need it when they need it. Mr Divers and the Board of Greater Glasgow & Clyde Health Board please think again.
Posted by: E thomas, Glasgow on 12:27pm Thu 3 Apr 08
It is clear from Professor Martin's letter that GG&C NHS Health Board have decided that referrals to St Margaret of Scotland Hospice for care of the frail elderly will cease from April 1st 2009 with the beds to go to the replacement Hospital at Blawarthill (private funding). It seems the only option open to the Hospice, if it wishes to continue being funded by the Health Board, is to provide care for people with mental illness.

Yet, it is evident the requirement for NHS continuing care beds remains, otherwise there would be no need to move this category of patient from the Hospice to Blawarthill. However, the Health Board appears unwilling to reconsider their decision and maintain the status quo which would allow the Hospice to continue to provide care for the older adult with complex medical and nursing needs.

Interestingly, The Scottish Government when descrbing NHS continuing health care state 'people should be able to have their health care provided according to their needs and delivered by the right professional in the right setting at the right time for the required period' (CEL 6 2008). It seems to me a Hospice is an ideal environment in which to care for the older patient with the most complex medical and nursing needs, particularly as they approach the end of their life. Yet these beds are to go, despite Hospice staff having the expertise and a proven track record in the care, management and support of older patients and their families.

This is not to say that patients with mental illness do not deserve the best of care, they do. However, this care should be provided by staff specially trained in the that field, and provided in an environment to meet their particular needs. This could be achieved quite easily by building a custom made unit at the replacement hospital at Blawarthill, allowing the NHS Continuing Care beds for the older adult to remain at the Hospice.

Finally I would like express my concern at the lack of consultation with St Margaret of Scotland Hospice regarding this change to the service they provide. I would also urge GG&C NHS Health Board to reconsider their decision in light of the growing public and cross party support for elderly beds to remain at the Hospice.


Posted by: colina, Falkirk on 2:24pm Thu 3 Apr 08
Really - why do we always have to make life difficult for ourselves? Keep the Continuing Care Beds in the Hospice - the service fits there in its purpose built charity funded facility alongside the terminally ill ward. Locate the categories of care (care for those with drug, alcohol, mental health problems) in the yet to be built PPP NHS Blawarthill facility. Come on Health Board, LISTEN UP to common sense!
Posted by: mario, glasgow on 6:34pm Thu 3 Apr 08
St Margerets Hospice must be supported. It is a unique centre which has for a very long time provided the kind of care one can only dream of for ones nearest and dearest. They are doing what others strive to achieve, medical care and love for the sick and failing. The Health Board must immediatley reverse their decision to withdraw their funding and support!
Posted by: CFB, Glasgow on 12:12am Fri 4 Apr 08
This current Health Board has a known track record in acting in an outrageous and autocratic fashion. Their past record in not consulting the public and patients, contorting and twisting other consultations exercises, shows them to be obsessively minded in unilaterally deciding the needs of health care. Patients, and their families, who are at the most vulnerable time of their lives are being put under increased stress, worry and pressure to satisfy the ill-informed and incredulous views of an already discredited Health Board
Posted by: BOB, Houston, Renfrewshire on 12:17am Fri 4 Apr 08
Andrew Robertson' s letter is confusing the issue. The facts are, from 01/04/2009 Greater Glasgow Health Board plan to withdraw funding of £1.2 million for Care of the Elderly at St Margaret of Scotland Hospice. This will reduce the Hospice from 60 to 30 beds.
The Health Board have stated in the press that they are not withdrawing funding.The fact is that they have given the Hospice a letter stating that they will no longer require the 30 beds for care of the elderly with complex medical and nursing needs.
The alternatives that Health Board have offered would conflict with the pallaitive care unit whereas the two existing wards support each other.
The lesson for the Health Board is do not fix that which is not broken.
Posted by: Hospice, G81 1EG on 2:01pm Fri 4 Apr 08


Disingenuous is perhaps the most generous and most polite description for Mr Andrew Robertson’s letter (1 April) regarding the purported efforts of NHS Greater Glasgow and Clyde to secure a viable future for St Margaret of Scotland Hospice
He will be aware of the Health Board’s letter of 13th March stating “it is therefore recommended that the Board no longer purchase a continuing care service from St Margaret’s from April 2009”.
That decision speaks for itself. What is not so clear is that the verdict was issued without any consultation whatsoever with the Hospice and with absolutely no regard for the nature of the specialist care being constantly refined at the Hospice thanks to the sterling commitment of staff.
The shabby attitude underlying the decision is all the more dismaying when you consider that, for many years, the Hospice has been severely underfunded. The Hospice own fundraising has, in effect, made it possible – albeit it with considerable difficulty - to provide ongoing care for 15 patients at no cost to the public purse. This was only possible because of resounding public support for the ethos and mission – a level of support reflected in the widespread anger that the work of the Hospice should be so poorly valued by the Health Board. It is worth noting that Greater Glasgow and Clyde Health Board enjoy a budget of £1.8bn of taxpayers’ money. Given that it costs in the region of £2000 each week to care for a frail elderly patient in a hospital bed, as opposed, to the Hospice receiving approximately one third of this one wonders whether we are witnessing an altogether more sinister agenda in the efforts to undermine the work of the Hospice- to the extent that the Hospice’s continuing existence is now at risk.
Posted by: mary222, clydebank on 4:51pm Fri 4 Apr 08
I am disgusted the way St Margarets Hospice has been treated,I live in this area and it has been helping the patients who are seriously ill to live out there lives with dignity it helps families to come to terms with what is happening to there loved ones,now they have decided to take this away and why?they should bow there heads in shame but the people who are involved in St Magarets won't buckle we wil fight on and thats a promise.
Posted by: Tony88, Glasgow on 5:14pm Fri 4 Apr 08
What is it with Health Boards and local authorities that they think they can just ignore the wishes of people on so many issues? I became disillusioned with Social Work a number of years ago when it became clear that it was no longer a 'caring' profession but more run like a business with the ethos of finding as many services as possible that could have a 'charge' tagged on to it. These people who run Health Boards and LA's know the price of everything and the true value of nothing. They are very highly paid from the public purse and treat the public with total disdain. They are so removed from life's realities that it is truly frightening.
In a truly caring society we would not be having this debate about St Margaret's. It would be a given that they be allowed to continue the fabtastic work that they do without looking over their shoulders and worrying about being properly resourced.
The Scottish Government should intervene and slap the Health Board down and make the correct decisions on their behalf.
Posted by: dariusz12, glasgow on 5:34pm Fri 4 Apr 08
The health board must reverse this terrible decision.My uncle spent his last days in St Margaret's ,the care and treatment was so special and proffessional that it would be a tragedy if this decision was not reversed .The board should take a right good look at themselves and hang their heads in shame
Posted by: karenwalker, MELBOURNE, AUSTRALIA on 8:28pm Fri 4 Apr 08
How can the NHS put a price on the cost of comfort, care and dignity in a humans final hours, days, weeks, months? How can they put a price on the support given to families in a time of turmoil?

As a former employee of St Margaret's, I am shocked by the NHS. They should not be looking at reducing funding for beds, they should be opening the doors of this fine establishment for the world to see - Lord knows we need places in Australia with the dedication to dignity and care such as that shown at St Margaret's.

WAKE UP TO YOURSELVES, TAKE A LOOK AT THE SUPPORT GIVEN TO PATIENTS AND THEIR FAMILIES ....... YOU CANNOT PUT A PRICE ON THAT .... SURELY!!!!!!
Posted by: leesome, Glasgow on 8:31pm Fri 4 Apr 08
The NHS Greater Glasgow & Clyde Health Board just keep abuse rolling on. Lies are a form of abuse.
Posted by: john.burns111, Bearsden on 8:58pm Fri 4 Apr 08
We cannot understand what the Health Board is doing. It should be pumping money into the Hospice, not planning to take it away. My father and mother-in-law both died in the Hospice and the care that they and the families received was so exemplary that I have words of praise high enough to describe it. The Health Board should be big enough to realise what a huge mistake it has made and should reverse its decision without any further delay. The Board should reali se that it is taxpayers' money that they are dispensing abd they have a duty to spend it as wisely and as effectively as possible - in this case funding the Hospice!
Posted by: allybally, Knightswood, Glasgow on 10:55pm Fri 4 Apr 08
I wonder if any of these people have ever experienced the genuine love, care and attention that's given to all St. margaret's patients. My Dad passed away last July in the hospice and I don't think that we could have coped without their love,care and dignity. The staff are all truly dedicated and committed to caring for all patients and this certainly is a service that deserves to be given more financial support and certainly under no circumstances should it be taken away from the Hospice.
We have a voice and we will be heard! We will fight this all the way!
Posted by: Tracy, Clydebank on 11:39pm Fri 4 Apr 08
I am totally disgusted with the NHS and the way they are treating the Hospice, St Margaret of Scotland Hospice is a special place for the patients that require there services and to their families. They provide an valuable service to the patients, their families and the community. The NHS should reverse it decision - they should be doubling the money not taking it away!! How can these people sleep at night!! SAVE OUR HOSPICE
Posted by: Tracy, Clydebank on 11:39pm Fri 4 Apr 08
I am totally disgusted with the NHS and the way they are treating the Hospice, St Margaret of Scotland Hospice is a special place for the patients that require there services and to their families. They provide an valuable service to the patients, their families and the community. The NHS should reverse it decision - they should be doubling the money not taking it away!! How can these people sleep at night!! SAVE OUR HOSPICE
Posted by: Harkie, Clydebank on 11:44pm Fri 4 Apr 08
I do not know how I would have coped with the death of my mother in October if she hadnt been in care of the hospice in her final days. They ensured she had the dignity she deserved and nothing was too much trouble for a dedicated team of professionals who work there. Nicola Sturgeon and the rest should look at themselves in the mirror and put themselves in the position of mine and many other families who the hospice have helped over the years. We will not give up the fight.

Allybally you are spot on-I both symapthise and empathise with you. The hospice and it's staff are the best of the best.
Posted by: alee06, Glasgow on 1:29am Sat 5 Apr 08
The care and dedication of the hospice is world class.
They assist us in our bereavement when my grandmother passed away last March.
No words can express my family's gratitude to the hospice for what they have done.
We are angry that the health board are removing crucial funding to the hospice. I am disgusted how the health board have dealt with things and not listen to those who were associated with the hospice through an terminally ill family member of friend.
I will protest against the health board all the way and support the hopsice 110%. WE must keep up the pressure on those who sit on the health board and make sure they do not remove funding and listen to what we have to say.
SAVE OUR HOSPICE
ALAN C. K. LEE MC MSYP
Posted by: alee06, Glasgow on 1:31am Sat 5 Apr 08
The care and dedication of the hospice is world class.
They assist us in our bereavement when my grandmother passed away last March.
No words can express my family's gratitude to the hospice for what they have done.
We are angry that the health board are removing crucial funding to the hospice. I am disgusted how the health board have dealt with things and not listen to those who were associated with the hospice through an terminally ill family member of friend.
I will protest against the health board all the way and support the hopsice 110%. WE must keep up the pressure on those who sit on the health board and make sure they do not remove funding and listen to what we have to say.
SAVE OUR HOSPICE
ALAN C. K. LEE MC MSYP
Posted by: mariafionda, Glasgow on 8:37am Sat 5 Apr 08
I am speaking on behalf of my mother and all the other patients at St Margaret's..... please please do not take the fund ing awa y from the Hospice. We are so well looked after and the care and love given to us by the Staff of St. Margaret is so very unique.

To all the board of the NHS which have made this decision rethink to what you are doing. Admit defeat and listen to the 90,000 people who have signed the petition.

SAVE ST MARGARETS HOSPICE, earn back the respect you have lost through this bad decision...
Posted by: MarilynL, Clydebank on 12:04pm Sat 5 Apr 08
Save the hospice : there are so many great staff working here that love their jobs and take great care of the patients. They provide constant relief to those who have lost loved ones in the past.
Posted by: t cunningham, bearsden on 8:33pm Sat 5 Apr 08
I and a great friend of mine Tim Stevens ( tiger tim ) were due to attend the Thursday night meeting in Clydebank town hall. But fate intervened and I was unable attend. You see my mother in- law passed away on Thursday morning. She was a patient in the St Josephs ward of St Margarets Hospice Clydebank. She was comfortable, surrounded by family and had received the best and kindest care available from the staff at St Margarets.

Ironic as it is that her passing occured on the day of the public meeting it has again inspired me to add my comments to the ten of thousands already recorded.

Two years ago i unfortunatley had the horrendoes experience of watching a family member die in a ward of The Gartnavel Hospital. Believe me when I say that this death was not peaceful, dignified or helped by caring hands. Im not saying the staff of Gartnavel did not care or try there best, its just that they had no time to devote the level off care required or indeed they did not have the infistructure or culture to give the level of care necessary.
In stark contrast to this experience, St Margarets was peaceful and dignified and all staff members on the morning and indeed on the following days were attentive, caring, sypathetic and even councilled the family. This level of one on one care just does not happen in other NHS facilities.
It would in my view be a crime to take away the beds of St Margarets. The NHS should not be deminishing the hospice role, they should be sending along their own staff to be trained in the ways of this beacon of dignity. St Margarets should be held up for all to see as this place is an oasis of calm in a turbulent care system. It has set the mark that all other palative care units should be reaching for.
I add my small voice to the many who plead with the powers that be to concider again there stanse on St Margarets and I pray that they will see the light and increase the funding not slash it.

your thankfuly tom cunningham ( local businessman )

Posted by: RDM, Elderslie on 5:39pm Sun 6 Apr 08
From the recent "Letters to the Editor" between Mr Andrew Robertson and Professor Leo Martin, it may well be that Mr Robertson has been poorly briefed by Mr Divers on the background surrounding Greater Glasgow and Clyde Health Board's latest shameful treatment of St Margaret of Scotland Hospice. Alternatively, he himself may simply have failed, thus far, to recognise the transparency of the case for the retention of 30 Care of the Elderly (with complex medical needs) Beds at the Clydebank Hospice.

In any event had he, or indeed Mr Divers, bothered to attend the Public Meeting of Thursday, 27 March 2008 at Clydebank Town Hall, he would have been left in no doubt as to the contempt in which the executive of the Greater Glasgow and Clyde Health Board is held by virtue of its latest decision reached after a sham of a consultation exercise. It will therefore be necessary for Nicola Sturgeon to demonstrate her political clout by reversing a ludicrous decision by this Health Board.
Posted by: gerard_q, bearsden on 8:32pm Sun 6 Apr 08
Earlier this year, my seriously ill mother passed away at St Margaret's Hospice.

Myself and my family were utterly bowled over by the excellent quality of care and support (medical, humanitarian and pastoral) that she received. We were equally struck by the professionalism of all staff and we really don't know how we would have managed without them.

It's my firm belief that the level of funding for specialist care afforded to St. Margaret's should be increased, never mind reduced... it's blatantly obvious.
Posted by: Ann, Milngavie on 9:17am Mon 7 Apr 08
The Hospice has a proven track record of excellent care for the elderly, the facility is modern and purpose built, there is an identified need for these beds. None of these facts seem to be in dispute.
Why then would anyone consider closing this facility?
I gather they have stopped receiving referrals from 1 April. What will happen to the patients already there? Will they be moved to the new facility? What a convenient way to reduce the number of patients in care, we all know that moving this category of patient results in a very high mortality rate.
By all means provide extra beds at Blawarthill, we are bound to need them as the population ages, but let St Margarets get on with what it does best - providing up to date, CARE for the most vulnerable in our community.
Posted by: fitzgt, Glasgow on 9:32am Mon 7 Apr 08
It seems to be that the NHS seem determined to close everything that is successful. If it ain't broke, don't fix it.

I know of many people who's relatives have had the benefit of the care of St Margaret's Hospice and it is highly thought of in the area. P
Posted by: maen, balloch on 10:37am Mon 7 Apr 08
St Margaret's of Scotland provides a service somewhat different to that in other continuing care provision. I would encourage the Health Board to include the expertise available there in its provision of service. Skill and education there can be shared in the wider community of care.
Posted by: Anne Davie Fawl, home on 4:24pm Mon 7 Apr 08
It is beyond belief that the staff and residents of St. Margaret's Hospice have even more stress heaped upon them. To deny care for the frail elderly within this setting that clearly works does not make sense within our country's Health Service that owes so much to our senior citizens. PLEASE PLEASE PLEASE think again and allow yourself to support the staff and residents of St. Margarets' in their already difficult day to day LIFE!
Posted by: spollock, home on 10:32pm Mon 7 Apr 08
Do the people who are making this awful decision fully understand what they are doing? I can tell them. If they implement their plans they are showing their ignorance, and not listening. Anyone who has experienced the care given by St. Margaret's Hospice would ever consider such an option. So I can say with certainty that they haven't. It would be a huge mistake if they didn't listen to the people that know.
Posted by: michele, coventry on 10:35am Tue 8 Apr 08
i dont understand why this is happening - they should be supporting the hospital at every angle - its people lives that are going to be affected - they should stop being the problem and start becoming the solution
Posted by: Madge, Milngavie on 6:13pm Tue 8 Apr 08
My mother is a patient at St Margaret for Scotland Hospice and due to the wonderful care and attention that she and my family recieve I started the now 90,000 (hand-written) strong petition. I have been humbled by the stories that ordinary people in the streets have been telling me and the other signature collectors. I am reduced to tears many nights just thinking that those who come after my mother may not have this service for long. Yes it is true the pallative beds like the one my mother is in will still be available, but as of 01/04/09 there will be no more continuing care beds. Both types of care work hand in glove with each other and the Health Board themselves admit that these beds are simply going to be moved a mile or so away in an as yet unredeveloped ancient hospital. Yes it will be redeveloped into a very modern facility at public expense - but do my eyes decieve me or do I not pass by the wonderfully charity funded new 30 bed ward at St Margaret's every day when I am visiting mum. So we as the public paid about (was it 4 million) in charity (and thanks) to the 58 year old established Hopspice, which recieves plaudits from its assessors and now the NHS wants us the same people to pay in our taxes God knows how much to build a similar facility for the exact same people and to show they mean business they will stop sending patients to the Hospice that taxpaying public want left open. Does this not seem like POWER gone MAD.
My petition was also raised with the Scottish Parliament and there did seemto be quite a bit of cross party support for what we are all trying to do. I was under the impression that Nicola Sturgeon had instructed Mr Diver to have the NHS and the Hospice enter into constructive discussions as to how this matter could be resolved. Unfortunately I was out of the country for a few weeks and missed the Public Meeting, but apparently a letter saying as of 01/04/09 there would be no more funding from the NHS for the Continuing Care beds at the Hospice. I have not heard of any one meeting in which the Health Board and St Margaret's have actually sat down since my petition was laid before Parliament. I have been shown letters from St Margaret's asking the Health Board for such a meeting but they have not entered into this debate, they have merely stated as a fate a comple that the Health Boards decision stands, this is not the consultation I was lead to believe was going to take place. I have also asked the NHS to give me copies of any meetings minutes with the Hospice in respect of Continuing Care beds since 2000 under the freedom of information. I have yet to recieve even an acknowledgement to any of my letters to the Health Board. I know think it is time that Nicola Sturgeon orders that a meeting with the NHS and St Margaret's takes place. she should also either attend it herself or have an arbitrator there.
As I have already said we have over 90,000 hand written signatures on the petition to save the Hospice but there is a web petition were you can add your comments. The Scottish Parliament, Petition Committee will be able to read these comments. My brothers and sisters (family) who live in Iceland, New Zealand, Canada, America, & Australia have been able to add their comments. Even though they live thousands of miles away the dignity in which their mother (your loved one) will be allowed to die is of great emotional comfort to them. So do we the users and future users of St Margaret for Scotland Hospice want to be the first APRIL FOOL of 2009 or do you want to save the Hospice.please sign at http://www.gopetitio
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Posted by: DrLucieWard, Leeds on 8:40pm Tue 8 Apr 08
THIS IS MADNESS. As a hospital doctor working in the NHS I am aware of some of the fantastic work that goes on within it. However I also see some of the inevitable shortcomings and the difficulties in making people feel comforted and welcomed in a hospital setting.
These problems are often addressed better by voluntary sector organisations such a St Margaret's where there is an opportunity to work more flexibly and be more responsive to the needs of patients and their families.
My grandmother has received an amazing standard of care in one of the Continuing Care Beds in St Margaret's which is now under threat.
Nothing is too much trouble for the staff and I know this devoted care has improved her physical and mental health. I have never seen anything like it in any other part of the NHS or private health sector.
The excellence of this care undoubtedly has saved her from repeated hospital admissions (as happened so frequently before she entered the Hospice).
So in summary the Hospice provides the best possible care for less than cost (because of the charitable element) and SAVES money because they keep patients well. What shred of evidence does the Health Board have to suggest its private health care providers could ever match this, at any price??? There is no question that the quality of care will fall and the likeliehood is the cost to the public of this poorer care will ultimately go UP due to increased illness and hospital admissions.
There can be no rational argument for what amounts to an act of vandalism against an outstanding caring organisaton.
I AM DISGUSTED and I suspect the Health Board has other financial motives... who will line their pockets with the private health provision and the renovation of Blawarthill Hospital. WE DESERVE ANSWERS. SAVE THE HOSPICE!!!!!!!!!
Posted by: pathannay, glasgow on 9:30pm Tue 8 Apr 08
My husband died in St. Margaret's Hospice last March.
Here ,my husband, and all our family were able to enjoy some quality time together, while his every need was taken care of.

I hope that Mr Divers will come and see for himself the wonderful work done in St. Margaret's in looking after patients and their families and continue to fund a very essential service.
Posted by: Jean English, Glasgow on 6:30pm Sat 12 Apr 08
St Margaret of Scotland Hospice provides specialised care to elderly people who are in the last stage of their life. Their age and the multiple morbidity which inevitably co-exist require that they receive the same holistic care that palliative care patients receive. This service is ideally located within the hospice. Why then remove these elderly care beds to Blawarthill and replace the beds the Hospice with social care or mental health beds, neither of which fit a Hospice environment?

The Health Board plan to reduce the number of continuing care beds for the elderly as they claim they will not be required in the future, in spite of an increasing elderly population and the inevitable illnesses that age brings. They suggest that care will be carried out in the community but at what cost and to the patient and family. Community care is often patchy, hard to sustain and places a huge burden on carers.

In order to instate their plan the Health Board intend to relocate the elderly beds from St. Margaret of Scotland to Blawarthill where a new unit will be built presumably incurring a substantial cost.
The future of the Hospice is under threat. Without the current funding by the Health

Board for these elderly people with complex needs the Hospice would not be able to sustain the care provided to dying patients of all ages.

It often seems that the patients are treated as pawns in a game of chess!
Posted by: Julie, Glasgow on 10:48pm Wed 16 Apr 08
I have the highest regard for the care my dad recieved here nearly 13 years ago and the support that my mum got, before and afterward his death.

St. Margaret's Hospice is a shining example of how care institutions should be.
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