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   Web Issue 3191 July 4 2008   
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Let parents go ahead and have a deaf child

It was heartening to read Professor Hugh McLachlan's letter (Emotional squeamishness over deaf baby, March 14) on the positive moral aspect of a deaf couple's request to choose an embryo destined to lead to the birth of a deaf child. Having mulled over the possibilities thrown up by embryo selection and the ethical dilemmas involved, my mind is made up to select, with my partner, only embryos destined to give rise to tall, intelligent, strong, blond and blue-eyed children - some readers might think this sounds familiar.

Consider an analogy: suppose, in a loch, several children are drowning and no-one is around to save them. One of the children has been born taller, stronger and more intelligent than the others (by my selection process) and manages to stay afloat, making it to the safety of land. None of the children had a stronger moral or legal claim to survive than the others. None had a positive moral or legal right to survive.

If I choose an embryo destined to have certain physical characteristics enabling survival under such circumstances, I would be doing nothing wrong - morally permissible.

Readers should note that the Darwinian term "fitness", in terms of survival, has nothing to do with physical size or strength, as is sometimes erroneously believed. It is much more complex, a bit like using morals as a justification for some things.

As for the people wanting to select for a deaf child, let them go ahead, but they might not get any great thanks from the offspring - only doing the experiment would give the answer in 10-20 years once the child has grasped the full import of what was chosen for it.

Dr Ronnie Gallagher, Edinburgh.

The comments made by Professor Hugh McLachlan simply do not stand up to scrutiny. His first argument is that it would not be wrong to choose a deaf baby that would otherwise not have been born. This fails on a number of points. First, it strikes me that a great number of babies would not have been born had their parents not had sex leading to their conception. However, this does not mean that the parents would have the right to ensure that their child's biology matches their own, simply because they ensured the child's birth. If a heroin addict became pregnant tomorrow, health services would do everything in their power to ensure that the child was not born addicted to heroin.

I am not, before I am beset by accusations, comparing deaf people to heroin addicts. I am comparing two conditions dangerous to the human body. Human beings evolved to have their level of hearing for many reasons, not least of which is safety. Noise can alert us to many dangers, from the sound of oncoming traffic to the yell of a passer-by if we do not notice we are in trouble. That is to say nothing of the cry of a child in distress. I defy anyone reading this correspondence to tell me that those who are deaf are not more at risk in the world than those with the full range of hearing.

Also, Professor McLachlan's analogy grants the status of a living child to an embryo. Not to choose an embryo which contains a gene that could cause the child to be deaf is not to kill a child, it is deciding that any child that is born will not be born deaf. This lapse in the labelling of an embryo as a child is also apparent in his "drowning children" story. Embryos that are not used are far from being dead children, and to liken them to drowning children who are not "saved" is preposterous.

It is the duty of a parent to ensure their child's safety. By ensuring a child will be born deaf, you are placing it in danger. While I sympathise with wanting to be close to your child and share with it your experiences, this should not be done at the cost of the child's safety.

Stephen Sutherland, Port Glasgow.


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Posted by: Cynicus, Scotland on 1:26am Mon 17 Mar 08
Let parents go ahead and have a deaf child
-Headline

Oh dear. Did the Herald sub-editor or whoever was responsible for this headline actually READ either of the letters underneath? Mr Sutherland's is a straightforward view, resolutely and directly opposed to that expressed by Professor Hugh McLachlan. The letter from Dr Ronnie Gallagher, however, is a merciless parody of Prof. McLachlan's whose arguments and analogy are satirised almost to the point of ridicule. At least I think it is.
Posted by: fatzdomingo, Glasgow on 10:38am Mon 17 Mar 08
Whatever is next? A couple where the man has a head like a wing nut, with a missus who would come a close second to a coos erse, both decide that they only want ugly weans!........Who am I to second guess nature?
Posted by: zeno, www.thinkhumanism.co m on 1:15pm Mon 17 Mar 08
Perhaps they should select a hearing child. Then, when the child is old enough, it can decide for itself whether it wants to become deaf (surely a simply operation), or stay hearing.
Posted by: Red, Glasgow on 11:11pm Mon 17 Mar 08
I find this a very interesting debate, as I am a (hearing) worker with deaf people. It can be, at times, that Deaf people view themselves as a minorty ethnic group, rather than the mostly medical model view that hearing people have.
BSL is recognised as a minority language, but only since 2003. Also the Deaf community can be quite exclusive, and those who can hear are not always welcome. Perhaps these parents recognise that thismight happen to their hearing child. However I struggle to agree with genetic selection. Here is a link to the interview with the parents which makes the point clearer than any of the above comments.

http://stopeugenics.
org/2008/03/12/bbc-b
reakfast-interview-w
ith-tomato-lichy-and
-paula-garfield/

Also link for interview with Prof McLachlan

http://www.stv.tv/co
ntent/tv/thefivethir
tyshow
Posted by: Ramsahoye, Edinburgh on 10:57am Mon 21 Apr 08
Dr Gallagher is correct to point out that, whether the parents are aware of it or not, in choosing to have a deaf child they are essentially embarking on an experiment. But we must be clear about what the experiment is testing. The experiment will test whether a child who would otherwise not have been born at all, would object to having been born because it was born deaf. The parents are not choosing deafness for that child. They are choosing life for it. They are not making that child deaf.

As to the outcome of this experiment, one’s life would have to be very unacceptable indeed to wish that one had not been born. This may well be the case for certain genetic diseases where the sufferer can look forward to a life of pain and hospitalisation. In my view, with the current technical expertise that is available it would be harsh and cruel to allow the birth of a child that would definitely suffer. However, I do not think that deafness would be so bad as to make the sufferer wish that they had never been born. Indeed the child might be very grateful for the chance of life. But this is just my opinion and the experiment would be the only certain way of testing this. Though one could estimate the likely answer by surveying people with genetic causes of deafness and asking them the hypothetical question: If following your conception your subsequent development and life could have been prevented, would you wish that you had never been born?
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